Vatican: Too late to start care for Charlie Gard

Charlie has a rare genetic abnormality that has robbed him of the ability to see hear swallow or cry

Charlie has a rare genetic abnormality that has robbed him of the ability to see hear swallow or cry

The case of Charlie Gard has attracted significant global attention this year, eliciting comments from the European Court of Human Rights, the Pope and even United States' President Donald Trump.

Charlie was born on August 4, 2016, and was diagnosed with a rare genetic condition called mitochondrial depletion syndrome.

His case first garnered global attention when his parents, Connie Yates and Chris Gard, were denied the right to transfer him to other hospitals by United Kingdom courts, despite having raised funds for an experimental treatment from an American doctor.

"We promised Charlie every day we would take him home", she was quoted as saying by British media.

His parents said the result was that because of the delays, the time frame when treatment would have helped had expired, and their son would never be helped by even the experimental treatment.

Hirano previously said Charlie had an 11 percent to 56 percent chance of benefiting from the experimental treatment.

Yates was in court for the hearing before judge Nicholas Francis.

The common view of Charlie's clinical team was that nucleoside therapy would be futile and therefore not in his best interests.

The BBC reports Armstrong "told the presiding judge Mr Justice Francis that U.S. neurologist Dr Michio Hirano had said he was no longer willing to offer the baby experimental therapy after he saw the results of a new MRI scan last week".

Great Ormond Street Hospital, which is caring for Charlie, has argued that it would be better for Charlie to die in dignity in a hospice.

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But, it was revealed at the time in court, that the legal battle staged by the hospital against the parents essentially consumed the critical time that the baby should have been getting treatment.

"Charlie's parents want him to be with them and ventilated at home for several days before receiving palliative care".

A 5-month legal battle over the fate of a terminally-ill British baby that drew the attention of Pope Francis and US President Donald Trump has also stoked an often angry debate about medical ethics and the courts. However, after seeing a new MRI scan this week, Hirano declined to offer the therapy.

Charlie Gard's parents have been told that their final wish for their little boy to die at home can't be granted, the High Court heard today.

"We return to the court for perhaps the most hard emotional part of this case - the circumstances in which Charlie's passing will be conducted".

23 May: Three Court of Appeal judges analyse the case. The High Court in London was now set to decide exactly how the baby would die.

"It was, therefore, with increasing surprise and disappointment that the hospital listened to the Professor's fresh evidence to the Court".

Great Ormond Street, one of the world's leading children's hospitals, said the case had been "a uniquely painful and distressing process for all concerned", and it was sorry it had been played out in public.

Mr Justice Francis began analysing the dispute at a hearing in the Family Division of the High Court and said he would make a decision if agreement could not be reached.

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